Monday, June 13, 2011

been a while

I dont know why I go for such a long time without writing. I guess things have been going pretty good until recently. Q is having a hard time with his seizures again. So here I am. Yesterday he was having drops just his top half and not to horribly bad or forceful. I just got done asking him how the drops were doing and he said fine I am not having any. I told him to go sit down anyhow so he did. At the table with the other two and bam then come "uhm MOM, Q just had a drop and broke his tooth" I jump up and he is already headed to the bathroom. :( His tooth is chipped pretty good. He didnt cry but was kinda upset his tooth was messed up. I dont blame him.

I am so sad that he can improve so much over a couple of months then its like his body gets use to the meds and they no longer work for him. He is probably having a good 50 or more seizures a day right now. Between the drops and absence seizures. So I guess I will be calling the doctor today and seeing if we can up the one medication we can still up. He is already on the max for the other one. Then maybe we can get a few more months of good out of it before having to up it again.

Ri is doing ok. Ups and downs since summer vacation has started. Lots of good numbers in there too tho. I just have to get the ups down a little more and she will be doing pretty good.

Caleb well he is all emotional all the time now. I hate puberty and autism!! He use to be so easy and now with all these hormones that are not easy to deal with as a typical child have him all over the place. He tried to call a old friend from Pueblo over the weekend and well he cant have a convo over the phone. He just doesnt get how. I felt so bad for him. The girl asked who he was and he looked at me and almost handed me the phone. I told him tell her who you are and he did but still :(. Its just sad he doesnt know how to talk to people. lol Let me rephrase that, he doesnt know how to have a convo. He can talk to you for a hour straight, maybe longer lol if he can just babble about what he wants to babble about.

Then onto me, I am bummed we were going to go to cali this summer and now well its just not going to happen. Nathan has not been working much at all the past two months. We were trying like all get out to save his vacation time but just couldnt do it anymore there are bills to pay. We have to live as much as I hate not being able to go life is such.........


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