Im sleeping on the floor again (to the tune of on the road again) because Q had a bad dream last night. I hear knocking on the Q monitor (he isnt a baby so it not a baby monitor) and get up its 2 a.m. I go to his room and he is scared because he had another bad dream. So I walk him back to my room he gets my spot in the bed next to dad. He has to sleep because of his seizures a bad nights sleep means a bad day of seizures. The poor kids has enough of them on a full nights sleep. So I grab my pillow and a blanket and crash back out on the floor. Then the alarm goes off at 3a.m. for Dad to get up. It disturbs Q just enough that I can have him scoot over into dads spot so I can reclaim mine. Out I go until I get that kiss goodbye then back out. To bad I had to get up at 11:45 p.m. as well to check Ri's blood sugars. Then 4:36 a.m. comes around and I am back up. I give Q his meds then so they have enough time to get into his system before he has to wake up. He just scared the crud out of me with a "mom I gotta go to the bathroom" so to the bathroom we went. Yes I go to the bathroom with my almost 13 yo son. He has drop seizuers and they are worse in the mornings he will be standing one second and on the floor the next. So I stand behind him with one arm under his arm and my hand across his chest braced and ready to catch him if I need too. Which I have caught him many times saving his face from being beaten by the porcelain thrown. Then I walk him back to my bed and hear him having a few seizures. His breathing now is going into his sleep breathing thankfully. All in a nights work.
Now seeing that its 6a.m. I get to start getting myself ready for the day. Put my face on find some clothes ect. At 7 comes the mad dash. Waking three kids up have them eat after Ri checks her blood sugars and I do the mat to figure out how much insulin she needs. Then help Q get dressed because of the drops again I stand there while he stand to take off and pull up his undies and pants. Then I leave him to do the rest. Then pack up Ri's lunch figure out her carbs and write how much insulin she will need on the box. Make sure she has her tester purse packed with stuff to treat lows and that she has enough strips to get her through the day. Then get her insulin kit into my purse. Brush all three kids hair and out the door we go by 7:35. Get Q in the car then grab his wheel chair. With how many drops he has its just safer and easier for him to be in it. Anyhow I get to get it in the back of my suburban which is not easy its a older chair and very heavy. Oh well I can do it at least. Then off we go to school. Where he will have a second breakfast both the one here and there are small so it really only equals one breakfast but they dont know that lol. If he is having a bunch of drops I will stay with him and feed him so he doesnt make a mess of himself. This both makes me smile and cry all at once. Its hard to feed him at 13 and not get sad but he is so silly and cute when I do he makes me smile. Time to hit post and get myself in gear cause life is such......
I thought I had my hands full! I already skip the "put on my face" part. lol
ReplyDeletelol Some mornings I skip it too but feel better with it on so I just do it.
ReplyDeleteYour kids are lucky to have such an awesome, amazing mom!
ReplyDeleteI love that you call it the "Q monitor"! :) and how did I not know that Quentin has a wheel chair? Is this a new thing, and is he using it all the time at school and stuff, or just on his worse days?
ReplyDeleteMy brother in law got the wheel chair a while back to have fun in it.One day they were watching the kids and Quinten sat in it all day. It was a easy day for them compared to jumping up every time he wanted to walk across the room. So he safely have the freedom to get around the house without someone holding onto him. He has always wanted a wheel chair. He would think of ways to break his legs so he could use one lol. Anyhow they gave it to him. He takes it way to far and wants to be in it 24-7 but its suppose to be only when he is having the drops. I started bringing it to the school this week. I dont take it out of the car after school so that is helping with his obsession with it.
ReplyDelete