Saturday, April 2, 2011

World Autism day

Turning blue for this one. 1 in 110 kids are being diagnosed with autism. I often wonder if its natures way of telling us to slow down. Natures way of creating a new breed of people. I know in my home its 2 out of 3. I am grateful tho that the boys are higher functioning. They can talk to me and communicate their needs. At one point they didnt do so well with that. I had no idea at the time it was autism tho. I thought they were being lazy or stopped talking because their baby sister was born. Must not forget they are just doing twin talk. Yeah not so much the switch that was flipped turning our lives around was and is autism. We didnt find out for many years after that this is what it was tho. Anyhow I made them use their words even if I couldnt understand what they were saying. I made them work for what they wanted. I cried many times not knowing what they were asking for but knowing it was something. Once I took everything out of the cupboards food drinks and asked this? Still the same babble was repeated. Finally I open the cupboard Bug was looking at and in there was the chocolate. I pulled it out and got the babble with a smile not frustration. The babble didnt even come close to the word chocolate. I sat there with him making him look at my mouth as I said chocolate. He wanted it bad and we got closer to the sounds in the word chocolate. Milk was another word that didnt come out close to the sounds in milk. My favorite word tho was now&later it came out alligators lol go figure they cant say milk but can say alligator even if it was meant to be now & later. I guess you can tell they had a sweet tooth. That was around age 3-4. Once they started speech therapy at the public school at age 5 they improved greatly. They still have problems communicating when they are upset often resulting in someone getting hit but its better than what it was. I figured out the boys were autistic around age 8 when we got a computer. I was and am still floored by it. I remember reading about it and just saying this is my boys. This is them all the way. I tried to get a dx for them but doctors suck and the nuero we went to see was more interested in telling me their stimulant meds for the adhd doesnt make seizures worse and wanted them back on them. I know and knew without a doubt they did make them worse. The guy was a jerk and why I dislike doctors he doesnt listen to the parent and forgets he is working for US not the other way around. So we moved and I home schooled the kids (not recommending this) for the first year we lived here. By the end of that school year I knew I had to get them back into public school here. It was to late in the school year to start their testing but by October we got the educational dx of autism. The school was amazed at the progress I made with the boys on my own with only speech therapy being given to them from a outside source. I told them "Autism is not a excuse, its the reason" and its how I always felt even when I didnt know what "it" was. So I worked hard with the boys getting them to learn and work for what they wanted. I made them say please and thank you or they didnt get or got what was given taken away. They sat in time out for 5 years for writing on the walls and then one day they got it. I didnt give up on them. They still need to learn to follow the rules even if it takes them longer and we need different methods to teach them to get it. The boys are high enough on the functioning scale that one day they will have to go out in the world and be able to function in it. I dont want them going out there and thinking oh I have autism so I can get away with this. No you cant and if you do you will end up with your butt in jail. I dont want that for them. I am blunt and honest with them and in turn they are blunt and honest with me. Heck Bug tells on himself 98% of the time lol. I remember the day he tried to lie to me the first time. I was happy but he is a horrible liar. I called him on it so he knows he cant get away with it but still I am glad he tries like any other kid. I went and got them their medical dx last year. I brought them to some lady cant remember what her tittle is at this point and she said within the first minute of them being their she knew they were autistic and as with everyone else wanted to know how it was missed. I wonder myself at times but know how without going into it here it just was. She also said in her report which she normally doesnt give to parents that I have a natural ability to handle these two boys. I know what works for them and what doesnt and when I dont know I figure it out. That isnt me bragging that is me not feeling like a failure as a mom. I got a lot of that when someone finally said yes its autism but her telling me that wasnt just that I wasnt a failure as a mom but a good mom for my kids. I dont always do things right nobody does but I know in the end I as their mother am doing them more good than harm. That means a lot to me. I know this blog is all over the place but life is such......

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